Sunday, April 18, 2010

11 months and . . . .


I've really been trying to keep all the updates on the kids in chronological order, but I felt that this update was urgent. Daelyn has been taking a few steps here and there for weeks now, and then today she was like. . . "I'm gonna get this thing down." And she did! It's so cute and she's so proud of herself. You can't really tell with the binky in her mouth, but she's laughing and grinning from ear to ear. Just had to show ya! Enjoy!


The week of Holley's birthday, she got to be student of the week, and take a "spotlight" poster to school!

Holley's 7th birthday!

Daelyn LOVED the Christmas tree and other decorations, we just could not keep her away!


Christmas eve Jammies! I almost didn't get them done this year, but finished them up Christmas eve day!

I LOVE this one of the girls!


I was just about to post some pictures from December, when I stumbled across some from JULY & august that I just couldn't pass up sharing. These pictures made my heart happy!

These pictures were from our camping trip to Alpine. I put socks on Daelyn's hands to keep them warm during the night, and in the morning, Holley and Brinley wanted their socks on their hands too.

Helpful Big sisters!

Sun Splash!

These two aren't the best quality as far as pictures go, but they are both the kind that make me just ache to be able to rewind time & make my little ones teeny again. The most frustrating thing for me about my health giving me problems when it did, is I feel I didn't get to "soak in" and just enjoy and cherish Daelyn's little baby days as much as I would have liked, or even as much as I was able to with Holley and Brin. There were times that I just wanted to hold her and rock her to sleep, but at times it just hurt too much to have her weight/wiggles and squirms against my stomach if it wasn't necessary. Don't get me wrong though, I was so blessed to have such a GOOD baby at a time like this, because I didn't NEED to rock her to sleep, I could just lay her in the crib and she'd go to sleep on her own, what a blessing, but I would have loved a little more cuddle time.

Tuesday, April 06, 2010

a few more.

Wow, two posts tonight. Derek took the girls out to jump on the tramp for a while before bed so I thought I'd post a few more outdated pictures. I think most if not all of these are from November.

Family Scripture Study. Holley didn't quite make it til the end this night.

Pictures from this past fall, and medical tests update.

Here are some cute pictures from October. I should be posting Easter, but we'll keep this all chronological and try to catch up on some of the old stuff first.

The girls at Apple Annie's!

Daelyn's 10 minute homemade costume.

Fairy & Southern Belle! (Wasn't gonna attempt homemade for these two this year!) They looked cute and loved their costumes!

My cute little Flower!

As for the update on the colonoscopy and all that . . . I feel kindof strange blogging all about all my medical stuff(who really wants to read about colonoscopys and intestinal problems?) but so many of you have been so kind to ask and be concerned that I want to keep you up to date. If you don't want to read all this junk, than by all means just skip it, but here is the latest low down for those of you who may have been wondering.

While waiting for results my weight dropped real low. Down to 100 lbs, which for 5'9" tall is much too low (approximately 30-40 lbs lower than recommended BMI.) I had to quit nursing Daelyn. The Gastroentereologist was not getting back to us on the results of the blood work and colonoscopy and our Family practioner was getting really concerned about my weight/malnutrition, so he called and said he wanted to put me in the hospital for a few days to get me on an IV for nutrition, and also an IV administered steroid. My Sweet hubby, got frustrated, and called the Gastroenterologists office. Derek finally got the Doc on the phone. Apparently my blood work came up positive for Crohn's but the colonoscopy didn't show much, so he wanted to do some MORE tests. He finally prescribed me something to try to help in the meantime though. So I started a steroid, and was able to avoid the hospital stay. My pain still is pretty bad, but it seems that since I've started the medicine, it's not quite as often, (I get a couple good or ok days a week.) It also seems to be helping me put some weight back on. I'm up about 5 lbs. I'm sure Gluten being back in my life is helping with that too. I feel like I'm eating well, but my body just does not seem to absorb any of the nutrition. I'm sure to see me people just think I'm not eating at all. (which brings up all sorts of bad memories from my youth of being called "anorexic" because I was so skinny, people don't usually feel sorry for the skinny girl, but that's a whole different post I'll maybe get to later.) I'm VERY HAPPY that I'm enjoying gluten again, and it does not seem to be linked to my problems. "Welcome back, bread, Pizza, Cake, etc, Oh how I missed you!"

Dr ordered an upper GI, that showed problems in my small intestines that had the radiologist perplexed. She said she'd never seen a case like it before and showed it to some colleagues in tucson who also found it "intriguing." Gastroenterologist found the findings "interesting" as well, and has shown them to other Dr's seeking opinions. Quotations on the words intriguing and interesting are because those are the word choices the Dr's used, make of it what you will. Basically my small intestines are dialated, (approximately twice the diameter of an average small bowel) and not properly functioning. Next step now is a capsular endoscopy. I basically swallow a pill size camera that will retrieve images of my intestinal tract. That will happen monday, I have to prep for it the same as the colonoscopy, which is the part I'm really dreading. It's interesting to me though how they can do something like that. I swallow the camera and then wear some device on a belt that picks up all the images/information from the capsule.

Dr still believes it to be Crohn's and has begun treating it as such, but still no "Confirmed diagnosis." I hope though to see improvement from the prednisone. In all my online "research" about Crohn's disease, symptoms, treatments, etc. My mind keeps going back to this funny post I read on one of my favorite blogs, and I thought I'd share the link to give you a crash course on crohn's as well as perhaps a chuckle or two. If you haven't ever read The Meanest Mom's blog before, you should, she is hilarious.Ms Crohn's disease Autoimmune pageant entry